Voices: Messages of Wisdom and Hope in the Face of Illness
This study, called "Voices," is looking at how chronic or progressive illnesses, like certain cancers (hematopoietic and lymphatic system neoplasm, malignant solid neoplasm), affect a patient's sense of dignity. It's an observational study, meaning you won't receive any new treatments. Instead, researchers will record your stories and experiences, and potentially those of your caregiver, to understand how these recordings might impact your dignity. The study aims to enroll 40 adults aged 18 or older who have a chronic or progressive illness. By understanding changes in dignity, doctors hope to find better ways to support patients and caregivers during treatment.
- Study design
- This is an observational study with an unclear status, planning to enroll 40 participants. It is not specified if it is randomized or blinded.
- What's involved
- You would participate in a semi-structured recording lasting about 60 minutes and a single follow-up recording. You would also complete an interview and survey, and your medical records would be reviewed.
- Compensation
- Not stated in the trial record.
- Follow-up
- The primary endpoint measures change in patient dignity impact at baseline (before and after recording).
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Voices: Messages of Wisdom and Hope in the Face of Illness
At a glance
Conditions
NCT07381179
Where you'd take part
This study runs at 1 site. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.
Mayo Clinic in Rochester
Rochester, Minnesotastudy coordinator listed
Recruiting
Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.
Study leadership
- Ugur Sener, MD · PRINCIPAL_INVESTIGATOR · Mayo Clinic
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
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Inclusion
Exclusion
What this trial measures
- Change in patient dignity impactBaseline (before and after recording)
Will assess patient dignity impact scale scores prior to and after completion of patient and caregiver recordings. The dignity impact scale (DIS) is a 7-item questionnaire with responses scaling from 1 (strongly disagree) to 5 (strongly agree). Higher scores indicate greater levels of dignity. Patient participants will complete the survey before and after their recordings as outlined in the schedule of events. Surveys will be completed digitally.