NCT07381985

Strategy for Management of Patients With Hereditary Cancer Syndromes (HCS) in a Rural Environment

Enrolling by Invitation
NAAges 18+InterventionalHealth services
University of Vermont Medical Center
~200 participants
Updated 2026-02-02 on ClinicalTrials.gov
What's tested:Longitudinal Cancer Genetics Follow-Up Program

At a glance

Recruiting sites
0 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Adherence to Cancer Prevention and Surveillance Guidelines
Measured over Baseline, 12 months, and 24 months
Hereditary Cancer Syndromes
BRCA1 Hereditary Breast and Ovarian Cancer Syndrome
Lynch Syndrome
1 sites across 1 states
Vermont1

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Eligibility criteria

Inclusion

Patients of all genders must be ≥ 18 years of age.
Patients must have a known pathogenic germline variant in a cancer risk gene that was identified by a CLIA-approved lab more than one year ago.
Patients must be able to accurately provide self-report data (i.e., per clinical judgment, cognitive function is intact).
Patients must be able to complete questionnaires in English.
Patients must have the ability to provide informed consent.
  • Adherence to Cancer Prevention and Surveillance GuidelinesBaseline, 12 months, and 24 months

    Proportion of participants who are adherent to National Comprehensive Cancer Network (NCCN) guideline-recommended cancer risk-reducing strategies-including surveillance imaging, colonoscopy, chemoprevention, and prophylactic surgeries-measured at baseline, 12 months, and 24 months. Adherence will be determined through a gene-specific adherence survey completed during clinic visits and supported by clinical documentation.