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Observational Study on Health Care Transition for Young Adults with Cancer Predisposition

This study looks at how young adults (ages 18 and up) with a cancer predisposition syndrome (CPS) — a genetic condition that increases cancer risk — transition from pediatric care at St. Jude Children's Research Hospital (SJCRH) to adult health care. Researchers want to see if you establish and keep up with adult doctors and continue with cancer screenings after graduating from SJCRH. You would complete a Readiness Assessment and surveys at 1, 3, 5, and 8 years after graduation. The study aims to understand if you successfully establish adult care and follow cancer surveillance guidelines. This is an observational study, meaning no new treatments are being tested, and it plans to include 56 participants.

Study design
This is an observational study that plans to include 56 participants. It is not testing a new treatment but rather observing outcomes over time.
What's involved
You would complete an electronic Readiness Assessment one month after graduating from SJCRH. You would also complete electronic Transition Outcomes Surveys at 1, 3, 5, and 8 years post-graduation.
Compensation
Not stated in the trial record.
Follow-up
Participants will be followed for 8 years after graduation, with primary outcomes evaluated at 1 and 3 years.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT07456904

Outcomes of Health Care Transition for AYA With a Cancer Predisposition

Recruiting
Not specifiedAges 18+Observational
St. Jude Children's Research Hospital
~56 participants
Updated 2026-06-18 on ClinicalTrials.gov
What's tested:Readiness AssessmentTransition Outcomes Survey ATransition Outcomes Survey B

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Establishment of Adult Health Care
Measured over Evaluated 1 year after consent from the study.
+1 more outcome measured

Conditions

Genetic Predisposition

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NCT07456904

Where you'd take part

This study runs at 1 site. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.

  • St. Jude Children's Research Hospital

    Memphis, Tennesseestudy coordinator listed

    Recruiting

Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.

Study leadership

  • Melissa R Perrino, MD · PRINCIPAL_INVESTIGATOR · St. Jude Children's Research Hospital

Who to contact

Melissa R Perrino, MD
[email protected]
888-226-4343
Email the study team

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Eligibility criteria

Inclusion

Participants are ≥18 years of age
Participants with a molecular or clinical diagnosis of a Cancer Predisposition Syndrome (CPS) who are graduating or have graduated from SJCRH.
Participants who were a patient of the SJCRH Cancer Predisposition Clinic for at least 3 years before graduating from SJCRH
Participants who require cancer/tumor surveillance within 1 year after graduation from SJCRH. Required cancer/tumor surveillance in adulthood is defined as having a CPS with expert guidelines recommending cancer/tumor surveillance in adulthood
Participants fluent in English.

Exclusion

Participants who are not their own legal medical decision-maker.

What this trial measures

  • Establishment of Adult Health CareEvaluated 1 year after consent from the study.

    Proportion of Young Adults with Cancer Predisposition Syndromes Who Have an Identified Adult Medical Provider Managing Cancer Surveillance One Year Post-Pediatric Care Transition

  • Maintenance of Adult Health CareEvaluated 3 years after consent from the study.

    Proportion of Young Adults with Cancer Predisposition Syndromes Who Maintain an Identified Adult Medical Provider for Cancer Surveillance Three Years Post-Pediatric Care Transition