This study is creating a collection of biological samples (like blood or tissue) and health information from adults with congenital heart disease (heart problems present at birth) and related conditions. The goal is to build a resource for future research to better understand these diseases, how they progress, and what factors affect a patient's health and well-being. Researchers hope to identify connections between clinical features and various biological markers, and to predict patient outcomes. You may be able to join if you are 16 years or older and have or are suspected of having congenital heart disease, other heart conditions, pulmonary hypertension (high blood pressure in the lungs), or certain genetic conditions. A group of healthy control subjects will also be included. The study aims to enroll 5000 participants, but its current recruitment status is unclear.

Study design

This is an observational study, meaning no specific treatments are being tested. It aims to enroll 5000 participants, including those with heart conditions and healthy controls.

What's involved

You would provide extensive health data and information through surveys about symptoms and lifestyle. Data and samples will be collected at baseline and during ongoing visits, such as outpatient appointments and procedures.

Compensation

Not stated in the trial record.

Follow-up

Not specified.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.