This study is looking at how well an intensive motor skill program called HABIT-ILE combined with functional strength training (FST) works for children with Spinal Muscular Atrophy (SMA). This program helps with both arm and leg movements and strengthening. You might be able to join if you are 5-17 years old, have a confirmed SMA diagnosis, can understand English, and have been on a stable dose of disease-modifying therapy (DMT) for at least six months. The study will measure success by looking at changes in your motor skills using a tool called the Hammersmith Functional Motor Scale - Expanded (HFMSE). The study is currently unclear on its recruitment status and plans to enroll 20 participants.

Study design

This is a single-arm pilot study, meaning all 20 participants will receive the same intervention. The study does not specify a phase.

What's involved

Participants will attend a summer camp for 6 hours a day over 3 weeks, totaling 90 hours of training. You will also complete assessments at the beginning, immediately after the intervention, and 3 months later.

Compensation

Not stated in the trial record.

Follow-up

Participants will be followed for 3 months after the intervention.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.