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Survey on Physical Activity and Quality of Life in Fibromuscular Dysplasia

This study is a survey for people with fibromuscular dysplasia (FMD), a condition affecting arteries that is not caused by plaque buildup or inflammation. Many FMD patients are advised to limit physical activity due to concerns about complications like heart attacks or strokes, but there are no clear guidelines. This survey aims to understand how these recommendations affect your physical activity and overall quality of life. The study plans to enroll 2000 participants and is open to individuals aged 18 to 100 who have been diagnosed with FMD and can complete an electronic survey in English. The main goal is to understand the physical activity restrictions recommended by clinicians at the start of the study.

Study design
This is an observational study, meaning researchers will collect information through a survey rather than testing a specific treatment. It aims to enroll 2000 participants.
What's involved
You would complete an electronic consent form and an electronic survey. The record does not specify any other visits or procedures.
Compensation
Not stated in the trial record.
Follow-up
The primary endpoint, clinician-recommended physical activity restrictions, is measured at baseline (the start of the study). No further follow-up is specified.

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NCT07529691

Survey on Physical Activity and Qualify of Life in Fibromuscular Dysplasia

Recruiting
Not specifiedAges 18+Observational
Vanderbilt University Medical Center
~2,000 participants
Updated 2026-04-20 on ClinicalTrials.gov

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Clinician-Recommended Physical Activity Restrictions
Measured over Baseline

Conditions

Fibromuscular Dysplasia of Arteries
Fibromuscular Dysplasia
Spontaneous Coronary Artery Dissection

Explore related trials

Fibromuscular DysplasiaSpontaneous Coronary Artery Dissection

Where it's being run

1 sites across 1 states
Tennessee1

Study leadership

  • Aaron W Aday, MD, MSc · STUDY_CHAIR · Vanderbilt University Medical Center

Who to contact

Amanda Morrison, MD
[email protected]
615-322-5000
Email the study team

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Eligibility criteria

Inclusion

Participants with a diagnosis of fibromuscular dysplasia
Age range = 18-100 years

Exclusion

Subjects who have an inability to complete the electronic consent form or electronic survey for any reason
Subjects who are non-English speaking who cannot read the electronic consent form or electronic survey

What this trial measures

  • Clinician-Recommended Physical Activity RestrictionsBaseline

    Prevalence and type of clinician-recommended physical activity restrictions among patients diagnosed with fibromuscular dysplasia (FMD), including aerobic, resistance, and activity-specific limitations.