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ACHD STRONG: Improving Healthcare Transition for Congenital Heart Disease

This study, called ACHD STRONG, is looking at ways to improve the transition from pediatric to adult healthcare for young people (ages 12-26) with congenital heart disease (CHD), which are heart problems present at birth. Many people with CHD also have disabilities, and this study aims to help them find the right doctors as they become adults. The study will compare different ways that nurses and doctors provide education about this transition. You might participate in an "Accessible Care Model Visit," interviews, or surveys. The main goal is to see how many people use the new tools and education provided, and this will be measured for up to one year. The study is currently unclear on its recruitment status and plans to enroll 450 participants.

Study design
This is an interventional study involving 450 participants with congenital heart disease. It compares different approaches to healthcare transition education.
What's involved
You may have an Accessible Care Model Visit, participate in 30-60 minute interviews, or complete surveys led by a study team member. Healthcare providers will also be interviewed.
Compensation
Not stated in the trial record.
Follow-up
The study will measure the uptake of assigned components for up to one year.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

NCT07559253

Implementation of an Accessible Healthcare Model (ACHD STRONG): Comparing Nurse and Physician Lead Healthcare Transition Education in a RE-AIM Framework

Recruiting
NAAges 12–26InterventionalHealth services
University of Wisconsin, Madison
~450 participants
Updated 2026-05-05 on ClinicalTrials.gov
What's tested:Accessible Care Model VisitRecruitment InterviewsParticipating Patient-Support Person InterviewsParticipating Patient-Support Person SurveysParticipating Provider Interviews and surveysUnstructured and semi-structured interviews

At a glance

Recruiting sites
1 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Percentage of Uptake of Assigned Components
Measured over up to 1 year

Conditions

Congenital Heart Disease

Explore related trials

Congenital Heart Disease

NCT07559253

Where you'd take part

This study runs at 1 site. They're the same protocol — you choose where, and that choice sets who your contact draft is addressed to.

  • University of Wisconsin

    Madison, Wisconsinno site contact published

    Recruiting

Sites open and close at different times, so the status above is per site — it can differ from the study's overall status.

Study leadership

  • Catherine Allen, MD · PRINCIPAL_INVESTIGATOR · UW School of Medicine and Public Health

Who to contact

Catherine Allen, MD
[email protected]
(608) 263-9783
Email the study team

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Eligibility criteria

Inclusion

Diagnosed CHD patients between the ages of 12-26 will be eligible
Able to provide assent when seen by a pediatric or adult congenital cardiologist provider.
A subset of patients will self-identify as having a disability, and or, be identified with disabilities in their medical or educational records.
Participants to provide assent/consent and complete all study activities in English or Spanish
Participants under the age of 18 must have a legal guardian who is able to provide consent in English or Spanish.

Exclusion

Providers may decline participation of any patient at their clinical discretion

What this trial measures

  • Percentage of Uptake of Assigned Componentsup to 1 year

    Assigned components include: surveys returned, clinic observations completed, and interviews completed.