ACT-GEN: Adherence and Care Tracking in Genetic Cancer Syndromes

This study, called ACT-GEN, is looking for women aged 18 or older who have specific genetic mutations (changes in genes like BRCA1/2 or those linked to Lynch syndrome) that increase their risk of cancer. The goal is to see if a new iPhone/Android app can help people with these genetic conditions follow recommended cancer screening guidelines and potentially lower their risk of developing cancer. Researchers will also conduct interviews with participants to understand their experiences. The study aims to enroll 80 participants and is currently unclear about its recruitment status.

Study design
This interventional study plans to enroll 80 participants. It involves an intervention with an app and interviews, compared to standard care.
What's involved
Participants may have up to three interviews, which can be done remotely. The study will last for an average of 1 year.
Compensation
Not stated in the trial record.
Follow-up
Participants will be followed through study completion, which is an average of 1 year.

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NCT07565467

ACT-GEN (Adherence And Care Tracking In GENetic Cancer Syndromes)

Not Yet Recruiting
NAAges 18+Interventional
M.D. Anderson Cancer Center
~80 participants
Updated 2026-08-24 on ClinicalTrials.gov
What's tested:Standard of careInterviews

At a glance

Recruiting sites
0 of 1 listed site is recruiting right now
RecruitingSuspended, closed, or not yet open
What they're measuring
Safety and adverse events (AEs).
Measured over Through study completion; an average of 1 year
ACT-GEN
Genetic Cancer Syndromes
1 sites across 1 states
Texas1
  • Jose Rauh-Hain, MD · PRINCIPAL_INVESTIGATOR · M.D. Anderson Cancer Center

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  • Safety and adverse events (AEs).Through study completion; an average of 1 year

    Incidence of Adverse Events, Graded According to National Cancer Institute Common Terminology Criteria for Adverse Events (NCI CTCAE) Version (v) 5.0