ACT-GEN: Adherence and Care Tracking in Genetic Cancer Syndromes
This study, called ACT-GEN, is looking for women aged 18 or older who have specific genetic mutations (changes in genes like BRCA1/2 or those linked to Lynch syndrome) that increase their risk of cancer. The goal is to see if a new iPhone/Android app can help people with these genetic conditions follow recommended cancer screening guidelines and potentially lower their risk of developing cancer. Researchers will also conduct interviews with participants to understand their experiences. The study aims to enroll 80 participants and is currently unclear about its recruitment status.
- Study design
- This interventional study plans to enroll 80 participants. It involves an intervention with an app and interviews, compared to standard care.
- What's involved
- Participants may have up to three interviews, which can be done remotely. The study will last for an average of 1 year.
- Compensation
- Not stated in the trial record.
- Follow-up
- Participants will be followed through study completion, which is an average of 1 year.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
ACT-GEN (Adherence And Care Tracking In GENetic Cancer Syndromes)
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Jose Rauh-Hain, MD · PRINCIPAL_INVESTIGATOR · M.D. Anderson Cancer Center
Who to contact
Opens a ready-to-send draft in your own email app — review before sending.
What this trial measures
- Safety and adverse events (AEs).Through study completion; an average of 1 year
Incidence of Adverse Events, Graded According to National Cancer Institute Common Terminology Criteria for Adverse Events (NCI CTCAE) Version (v) 5.0