Project Independence for Caregivers of Autistic Youth

This study, called Project Independence, is testing an online program designed to help caregivers of autistic youth (ages 10-14) support greater independence in daily routines. You can join if you are an adult (18+) in the U.S. who is a parent, family member, or legal caregiver primarily responsible for an autistic youth. The study will measure how confident caregivers feel after using the program. We don't have information on the current recruitment status, but the study plans to enroll 70 participants.

Study design: This study will randomly assign participants to either complete the Project Independence online program or watch unrelated educational videos. It aims to enroll 70 participants.
What's involved: Participants will complete a self-guided, online, single-session digital intervention delivered through interactive audiovisual content. This includes readings, stories/videos, and structured reflection.
Compensation: Not stated in the trial record.
Follow-up: Your perceived change in caregiver confidence will be measured immediately after completing the intervention.

AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.

Project Independence

Recruiting

NAAges 18+InterventionalSupportive care

University of Miami

~70 participants

Updated 2026-05-19 on ClinicalTrials.gov

What's tested:Project Independence

At a glance

Recruiting sites

1 of 1 listed site is recruiting right now

RecruitingSuspended, closed, or not yet open

What they're measuring

Perceived Change in Caregiver Confidence

Measured over Baseline (pre-intervention), immediately post-intervention (same session)

Conditions

Accommodation

Daily Activities

Independence

Autism

Where it's being run

1 sites across 1 states

Florida1

Study leadership

Jill Ehrenreich-May, Ph.D. · PRINCIPAL_INVESTIGATOR · University of Miami

Who to contact

Sandra L Cepeda, M.S.

[email protected]

305-284-2712 · ext. ext. 1

Email the study team

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Do you actually qualify for this trial?

Add a private profile and we'll compare every criterion below against your situation — and tell you which ones are met, uncertain, or excluding.

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Eligibility criteria

Inclusion

Any adult (age 18+) who is a parent, family member, or legal caregiver and is one of the main adults responsible for the daily care of an autistic youth in the targeted age range for at least half of the time.

Those that currently reside in the United States

Those that have a mobile device (e.g., laptop, tablet, smartphone) or desktop computer and internet access sufficient for the delivery of the study assessments and online intervention

Those who may or may not report current clinically significant psychopathological symptoms (e.g., anxiety, depression, parental stress).

Exclusion

Adults unable to consent

Individuals who are not yet adults (i.e., infants, children, teenagers).

What this trial measures

Perceived Change in Caregiver ConfidenceBaseline (pre-intervention), immediately post-intervention (same session)
Caregivers will rate their perceived confidence in their ability to support their child in building independence in daily living skills using an 11-point rating scale (developed for the purpose of this study), from 0 ("Not at All Confident") to 10 ("Extremely Confident"). Higher ratings on this item indicate greater perceived confidence to support youth independence in daily living skills.

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