Bereaved Parent Conversations on Hope Study
This study is exploring whether virtual conversations about hope are possible and helpful. These conversations would be between bereaved parents (parents who have lost a child) and learners (students, observers, trainees, and new clinicians) at St. Jude Children's Research Hospital. The study uses a "Discussion Guide" to help structure these talks and a "Post-session Reflection Exercise" for participants to share their thoughts afterward. Researchers want to see if these conversations are easy to do and if participants find them valuable. They also want to understand the impact these discussions have on both the bereaved parents and the learners. The study aims to enroll 75 participants, but its current status is unclear.
- Study design
- This is an interventional study involving 75 participants. It is not specified if it is randomized or blinded.
- What's involved
- You would participate in a virtual intervention and associated study activities, including surveys at enrollment and after the virtual meeting, and written reflections.
- Compensation
- Not stated in the trial record.
- Follow-up
- Your participation involves assessments at enrollment and on Day 1 after the virtual meeting.
AI-generated from the public study record. Only the study team can confirm whether you're eligible — confirm details with them before making decisions.
Bereaved Parent Conversations on Hope
At a glance
Conditions
Where it's being run
1 sites across 1 statesStudy leadership
- Brittany Cowfer, MD · PRINCIPAL_INVESTIGATOR · St. Jude Children's Research Hospital
Who to contact
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Do you actually qualify for this trial?
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Inclusion
Exclusion
What this trial measures
- Feasibility of Intervention and Acceptability of Intervention MeasuresDay 1 after virtual meeting
Feasibility will be evaluated using the Feasibility of Intervention Measure (FIM), which includes four itemized responses that are scored from one to five, such that one represents the lowest possible mean score and five the highest possible mean score. Acceptability will be evaluated using the Acceptability of Intervention Measure (AIM), which includes four itemized responses that are scored from one to five, such that one represents the lowest possible mean score and five the highest possible mean score. Feasibility and acceptability will be evaluated for the overall study cohort, including both learners and bereaved parent advisors, and by subgroup. Feasibility and Acceptability are standardly considered to be achieved with a mean score ≥3 for each. Higher scores indicate greater perceived feasibility and acceptability.
- SurveyAt enrollment and day 1 after virtual meeting
To evaluate the impact of discussions about hope on both bereaved parent advisors and learners, investigators will summarize the distribution of responses to the pre and post intervention survey items by reporting frequencies and percentages for each response category. Pre-intervention surveys will also contain demographic information.
- Written ReflectionsDay 1 after virtual meeting
Written reflections, captured after each virtual session, will be de-identified and analyzed using content analysis, an inductive approach which may include memo-writing, codebook development, coding, reconciliation, and synthesis to identify patterns and themes that emerge from the reflections. These will be used to assess impact of the session on both learners and parent advisors.